WHAT DOES AUSTIN'S WAY MEAN?
We were told many times that Austin would chart his own path. At the time, we had no idea how true that would be.
An easy way to think about the UBA5 gene mutation is it functions as a spectrum. Some children can sit, walk with assistance, write, and feed themselves; while others have never been able to walk, sit, feed themselves, and possibly restricted by several medical devices.
In six years we have seen Austin move across a spectrum in a physical aspect.
Although be progressed slowly he was able to prop sit, walk in a gait trainer, stand in a supine stander, attend school and therapy sessions, feed orally, and make the world's cutest noises. He can no longer sit up or support any of his weight or head, he is also bed-bound, utilizes a feeding pump, and requires humidified air due to his tracheostomy.
TOUCHING LIVES AUSTIN'S WAY