June 27, 2025. Austin would have turned 12 today. Twelve. That number hits hard. It’s a number that reflects so much more than time—it represents growth, milestones, and memories we never got to make. As parents, birthdays should be days of laughter, balloons, cakes, and joyful chaos. But when your child is no longer physically here, birthdays become something else entirely. They become a beautiful ache—a collision of celebration and grief.

3rd annual Aces is approaching! Recent A1F updates & a deeper dive into the story behind the ⁠Austin 1st Foundation⁠ — a mission born from love, loss, & an unshakable drive to make a difference. After losing their son Austin to a rare genetic disease known as UBA-5, the Terlings turned their grief into purpose, founding an organization dedicated to raising awareness, funding research, & supporting families navigating the unknowns of rare diseases.

I don’t understand. That hindsight thing. God is using Austin’s story—through the Austin 1st Foundation—to help others.

Rare Disease Day 2025: Spreading Awareness Through Young Minds in the Classroom

Mark your calendars for Monday, May 19, 2025, and get ready for a day on the greens with purpose at the 3rd Annual Aces Fore Austin Charity

This year, our efforts across research, awareness, change, and support have created impactful experiences and outcomes, and we are humbled t

On a beautiful day, the 2nd Annual Aces Fore Austin charity golf scramble came and went with resounding success, raising over $30,000.

On June 10, 2024, mark your calendars for a day for teeing it up, sinking putts and making a difference at the 2nd annual Aces Fore Austin.

Every year, Rare Disease Day serves as a reminder of the struggles faced by millions worldwide and the urgent need for awareness, support, c

Lindsey and I tried to live everyday with Austin as if his tomorrow wouldn’t come. We would talk about ways we could live in the present whi

As you let a part of my soul fly- feel the comfort of my heavenly hug as you cry and again say good-bye. Although you can’t see me, I can...

Life came full circle on June 12, 2023, and I started to understand a little bit of God's plan. Whether I like all parts of the plan or not.

Happy 10th Birthday, Austin! - I’ve always had a weird thing with numbers.

WIDOW A wife that loses a husband. WIDOWER A husband that loses a wife. ORPHAN A child that loses their parents. UNKNOWN There is no word...

From the view of a Mother. Some days were harder than others at trying to do everything you could to help Austin be at his best that day....

Hard Hitting - For a true glimpse into the life of a parent caring for a child with a rare disease. Celebrate Rare Disease Day 2023...

(Austin & Family - Christmas 2017) Austin Terling passed away in July of 2022, at only 9 years old, from a neurodegenerative brain...

The story behind Austin and the impact he made and why Austin 1st Foundation was created.