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Champions for Rare Disease by raising awareness and research dollars to provide support for families in Alabama and beyond.

We help support rare disease research and families in need.

Care about Rare!


- Our Story -
Austin Forever Blog 


Get to Know Us

We are a family that has experienced and endured the journey of having a medically fragile child with a rare disease. A 9-year-old child that ultimately left this earth because of his rare disease, but not without greatly impacting our lives in so many positive ways.


Watch Austin's Forever Video!


We've taken the impact Austin made on our friends and family to spread the "Austin 1st Way" with those going through their own rare disease journey.


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$22k for research from the Inaugural "Aces Fore Austin" 
golf scramble
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