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Still Celebrating, Still Grieving: Austin’s 12th Birthday in Heaven
June 27, 2025. Austin would have turned 12 today. Twelve. That number hits hard. It’s a number that reflects so much more than time—it represents growth, milestones, and memories we never got to make. As parents, birthdays should be days of laughter, balloons, cakes, and joyful chaos. But when your child is no longer physically here, birthdays become something else entirely. They become a beautiful ache—a collision of celebration and grief.

Mom & Dad / Co-Founders
Jun 27, 20256 min read


Rare but Resilient: "Our Why" discussed on the Playeasy Podcast, Aces is coming, & A1F updates
3rd annual Aces is approaching! Recent A1F updates & a deeper dive into the story behind the Austin 1st Foundation — a mission born from love, loss, & an unshakable drive to make a difference. After losing their son Austin to a rare genetic disease known as UBA-5, the Terlings turned their grief into purpose, founding an organization dedicated to raising awareness, funding research, & supporting families navigating the unknowns of rare diseases.

Mom & Dad / Co-Founders
Apr 27, 20254 min read


Believe but I Don’t Understand
I don’t understand. That hindsight thing. God is using Austin’s story—through the Austin 1st Foundation—to help others.

Pam Terling - Austin's Mimi
Mar 19, 20254 min read


Rare Disease Day 2025: Spreading Awareness Through Young Minds
Rare Disease Day 2025: Spreading Awareness Through Young Minds in the Classroom

Kelly Jarrett
Feb 19, 20255 min read


Aces Fore Austin: Teeing Up for Rare Disease
On June 10, 2024, mark your calendars for a day for teeing it up, sinking putts and making a difference at the 2nd annual Aces Fore Austin.

Anthony Terling
Mar 16, 20243 min read


The Joy In The Struggle
Lindsey and I tried to live everyday with Austin as if his tomorrow wouldn’t come. We would talk about ways we could live in the present whi

Anthony Terling
Oct 22, 20235 min read


Everything's Lovely
Happy 10th Birthday, Austin! - I’ve always had a weird thing with numbers.

Lindsey Terling
Jun 27, 20234 min read
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WIDOW A wife that loses a husband. WIDOWER A husband that loses a wife. ORPHAN A child that loses their parents. UNKNOWN There is no word...

Austin 1st Foundation
Apr 26, 20231 min read


Austin Forever - Celebration of Life
The story behind Austin and the impact he made and why Austin 1st Foundation was created.

Austin 1st Foundation
Dec 31, 20225 min read
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