Don’t wait, register to GOLF - SPONSOR - DONATE for the 4th Annual Aces Fore Austin Charity Golf Scramble and help drive real change.

While Rare Disease Day is global in scope, for Austin 1st its impact is profoundly local. RDD represents awareness in action, through classrooms, sports, proclamations, and community-wide participation.

June 27, 2025. Austin would have turned 12 today. Twelve. That number hits hard. It’s a number that reflects so much more than time—it represents growth, milestones, and memories we never got to make. As parents, birthdays should be days of laughter, balloons, cakes, and joyful chaos. But when your child is no longer physically here, birthdays become something else entirely. They become a beautiful ache—a collision of celebration and grief.

3rd annual Aces is approaching! Recent A1F updates & a deeper dive into the story behind the ⁠Austin 1st Foundation⁠ — a mission born from love, loss, & an unshakable drive to make a difference. After losing their son Austin to a rare genetic disease known as UBA-5, the Terlings turned their grief into purpose, founding an organization dedicated to raising awareness, funding research, & supporting families navigating the unknowns of rare diseases.